Community Council: Global Genes

Global Genes is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope, the Blue Denim Genes Ribbon.

They are gearing up for the 2017 RARE Patient Advocacy Summit, which will be happening September 14-15 at Hotel Irvine in Irvine, California. This event brings rare advocates from across the globe together to Connect, Collaborate, and Activate. 

Also happening is their annual Tribute to Champions of Hope event on September 16th at Grove of Anaheim. The purpose of the Tribute to Champions of Hope is to recognize those who are uniquely attacking the challenges they face in the fight against rare disease.

For more info on Global Genes and their upcoming events visit their website here.

To learn even more about Global Genes listen to our Community Council interview with CEO & Founder Nicole Boice below:

 

Tune in to Community Council

Every Sunday @ 7:20 AM on 102.7 KIIS FM!

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